Research and outcomes
We monitor the effectiveness of our CFS/ME services by carefully analysing feedback from patients who have taken part in our group programmes.
The adult team has researched and adopted the use of alternative media to support people with CFS/ME. The use of such media (telephone and email) to support people with CFS/ME improves access to therapy-led services for people who are unable to attend face-to-face appointments. In a service evaluation of support via alternative media, patient satisfaction was very high. Face-to-face contacts were reduced where appropriate.
This has been used as a national exemplar in the NHS operating framework 2010 - one of only two exemplars adopted for occupational therapy interventions.
Research into CFS/ME in children and young people is a relatively new area. Dr Esther Crawley, who leads our children and young people’s CFS/ME service is engaged in a research project with Bristol University. The research team is looking at:
- factors associated with, and predictors of, fatigue in people aged 13;
- the different types of CFS/ME in children, the types of anxiety experienced and associations with school attendance;
- developing school nurse screening and an early intervention to be delivered in schools, with the aim of investigating whether early intervention can prevent the development of long-term fatigue;
- the impact CFS/ME has on families. We have completed our work on the financial impact and are about to look at the impact on relationships and siblings.